My name is Madeline Simon and I am 43 years old, I was diagnosed with Multiple Sclerosis (MS) back in 1993, the relapse/remitting type, what this means is if I get a relapse I go into hospital for 5 days of intravenous Methyl Prednisolone, which luckily works for me.
My specialist also gave me some sound advice; eat healthily, cut out saturated fats, reduce carbohydrate intake and reduce the intake of dairy products, exercise and most importantly to avoid stress. The first two were no problem but the 3rd, avoiding stress, was a little more difficult, as we all need a certain amount of stress but my career did not help matters as a purchasing manager trading on the commodity and foreign exchange markets.
I had 2 more relapses, one in 1994 and the other in 1997 and then at the end of 2000 something flipped and I could not continue with my work, I had to sell my house and I moved back in to live with my parents. My MS is now reclassified as Chronic progressive. Initially I was quite a mess, having all my food cut up in small pieces, not able to walk in open spaces and was very reliant on the people around me. I went into hospital for some more treatment back in 2002 as nothing else was helping. Once out I got introduced to Liz Norton, a neurologist physiotherapist, who today continues to be a great help to me. I learnt how to walk again and got some form of independence in driving again. I was also introduced to one of the top neurologist physiotherapist in the UK, Patty Shelley. Liz & I go and see her for treatment about twice a year.
I have, unfortunately, had two further relapses back in 2006 and then another in 2007,which was my worst one to date. It was more of a physiological battle than anything else, as I had given up everything and didn’t know what to do next and it took me longer to recover.
However, I am a fighter and a great believer of mind over matter.
Unfortunately, back at the beginning of 2010 I started to go downhill again. I was struggling to keep fit, it was like a viscious circle, I didn’t exercise because fatigue would set in, my muscle tone went, even walking up & down the drive I would get so out of breath and my skeletal frame kept going out of place and it continued to spiral down.
Then, on my last visit to see Patty, she recommended I try and use a Powerbreathe and since then I haven’t looked back. I am less fatigued, have more energy, I’m choking less and swallowing has greatly improved. My speech is stronger & not staccato, my face muscles are taught and my upper bone structure keeps in place better.
I really would strongly recommend it to all.
I started using the Powerbreathe light resistance back in August 2010, twice a day, 30 breaths each time. It was not fatiguing and I soon moved up to my current Powerbreathe, the heavy resistance. However, now I only need to do it once a day, just to ensure my strength is kept up as I’m not needing the athletic strength!